Cleft Lip and Cleft Palate
http://www.marchofdimes.com/professionals/681_1210.asp
This fact sheet from the March of Dimes provides a quick reference on the
conditions of cleft lip and cleft palate.
Cleft Lip and Palate – The School Aged Child
http://www.cleftline.org/publications/summaries.htm#schoolage
This booklet is divided into two sections, one addressing the medical concerns
of a school-aged child born with a cleft and the other providing information
about the school experience for these children.
Cleft Lip and Palate Association
http://www.clapa.com/
CLAPA was set up in 1979 as a partnership between parents and health
professionals. It provides support for new parents, and for people with the
condition and their families, from infancy through to adulthood.
Cleft Palate Foundation
http://www.cleftline.org/
The Cleft Palate Foundation (CPF) is a non-profit organization dedicated to
optimizing the quality of life for individuals affected by facial birth
defects. It was founded by the American Cleft Palate-Craniofacial Association
in 1973 to be the public service arm of the professional Association.
Maternal, Child and Family Health - Specialty Clinics
http://health.hss.state.ak.us/dhcs/specialty.htm
The Specialty clinics improve access to care for children with special health
care needs in need of consultation, screening and follow-up. Cleft Lip and
Palate, Cardiac and Neurodevelopmental specialty clinics are included.
Stone Soup Group - Parent Navigator Program
http://www.stonesoupgroup.org/parnav.htm
A Parent Navigator is usually the parent of a child
with special health care needs who has learned about the developmental
disability and health care service delivery system through their own
personal experiences.
