Cleft Lip and Palate Association
www.clapa.com
CLAPA was set up in 1979 as a partnership between parents and health
professionals. It provides support for new parents, and for people with the
condition and their families, from infancy through to adulthood.
Cleft Palate Foundation
www.cleftline.org
The Cleft Palate Foundation (CPF) is a non-profit organization dedicated to
optimizing the quality of life for individuals affected by facial birth
defects. It was founded by the American Cleft Palate-Craniofacial Association
in 1973 to be the public service arm of the professional Association.
Maternal, Child and Family Health - Specialty Clinics
www.hss.state.ak.us/dph/wcfh/specialty.htm
The Specialty clinics improve access to care for children with special health
care needs in need of consultation, screening and follow-up. Cleft Lip and
Palate, Cardiac and Neurodevelopmental specialty clinics are included.
Stone Soup Group - Parent Navigator Program
www.stonesoupgroup.org/parentnavigation.html
A Parent Navigator is usually the parent of a child
with special health care needs who has learned about the developmental
disability and health care service delivery system through their own
personal experiences.
