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STEP Center

Developmental Disabilities

This topic has information for the parent just being introduced to developmental disabilities, sometimes referred to as mental retardation or for the parent wanting more information about this topic. Clicking on these links will take you away from the Anchorage School District's Web site. Each link will open in a new window. New window icon.

Bookshelf Return to Disability Related topics

Publications

ARC Family Resource Guide for Alaska
www.asdk12.org/depts/step/disability/documents/Alaska_Family_Resource.pdf
A guide to benefits, supports & services for families raising children with mental retardation and related developmental disabilities.

Children who are Mentally Retarded
www.aacap.org/publications/factsfam/retarded.htm
This article from the American Association of Adolescent and Child Psychiatry explains that the term "mental retardation" is often misunderstood and seen as derogatory. Most children with mental retardation can learn a great deal, and as adults can lead at least partially independent lives.

Community Resource Mapping - A Strategy for Promoting Successful Transition for Youth with Disabilities
www.ncset.org/publications/viewdesc.asp?id=939
This brief introduces a dynamic process for creating synergistic community collaboration among those concerned with youth development, and for maximizing the community's human and financial resources that support youth. The brief includes a detailed explanation of Community Resource Mapping, a list of the benefits of mapping, examples of mapping efforts, whom to contact information for further information, and other related resources.

Designing Individualized Education Program Transition Plans
http://ericec.org/digests/e598.html
Early and meaningful transition planning, which actively involves students and their families, has a positive influence on students' post-school success and independence. This digest describes the process of designing quality IEP transition plans.

Guide to Developmental Disability Services
www.asdk12.org/depts/step/disability/documents/DDguide.pdf
Alaska's individualized service system for people with developmental disabilities operates in a maze of regulations. Parents often struggle to understand eligibility, planning, billing, reporting, and assessment rules. The Guide to Developmental Disability Services was written to help parents understand what Developmental Disabilities Services are and how these services can work for you.

Mental Retardation Update: 2002
http://ericec.org/digests/e637.html
This overview/update article discusses the diagnosis of mental retardation, prevalence rates, causes of mental retardation, characteristics as well as educational and adult programs.

Mental Retardation Fact Sheet
www.nichcy.org/pubs/factshe/fs8txt.htm
Mental retardation is a term used when a person has certain limitations in mental functioning and in skills such as communicating, taking care of him or herself, and social skills. These limitations will cause a child to learn and develop more slowly than a typical child.

Pathways to Employment: Non Degree Postsecondary Options for Individuals with Developmental Disabilities (Part II)
www.heath.gwu.edu/node/207
Published by George Washington University, the author of this document discusses training, support, and vocational experience for adults with developmental delays.

Self-Determination - Supporting Successful Transition
http://ncset.org/publications/viewdesc.asp?id=962
This brief outlines research on self-determination suggesting that youth with disabilities who actively direct their own lives are more likely to successfully transition into adult life. In addition, the brief addresses development of self-determination skills and student-led Individualized Education Program meetings. Also included are descriptions and contact information for several self-determination curricula and helpful Web links. 

Technical Assistance Guide: Helping Students with Cognitive Disabilities Find and Keep a Job
www.nichcy.org/pubs/stuguide/tabook.htm
Hosted by the National Dissemination Center for Children with Disabilities (NICHCY), This Technical Assistance Guide is written for those involved in helping students with cognitive disabilities, such as mental retardation or autism, find and keep a job.

Web sites with general information

American Association on Mental Retardation
www.aamr.org
An on-line resource that will augment our activities and give you rapid access to information about the mental retardation and disabilities field.

The Arc of the United States
www.thearc.org
The Arc is the national organization of and for people with mental retardation and related developmental disabilities and their families. It is devoted to promoting and improving supports and services for people with mental retardation and their families. The association also fosters research and education regarding the prevention of mental retardation in infants and young children.

Center for Excellence in Developmental Disabilities
www.waisman.wisc.edu/cedd/indexfr.html
The mission of the Center for Excellence in Developmental Disabilities is to support the full inclusion and self determination of people with developmental disabilities and their families. The Center accomplishes this mission through its preservice training programs, clinical and intervention services, continuing education programs, and technical assistance and consultation services.

Council for Exceptional Children - Division on Developmental Disabilities
www.dddcec.org
The purpose of The Division on Developmental Disabilities (DDD) is to advance the education and general welfare of individuals with cognitive disabilities/mental retardation, autism, and related disabilities, and those who serve them.

Family Village - Cognitive Disability/Mental Retardation
www.familyvillage.wisc.edu/lib_cdmr.htm
This Web section of Family Village provides many Web links for resources for family on the topics of cognitive disabilities.

National Association for the Dually Diagnosed
www.thenadd.org
NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs.

National Center on Birth Defects and Developmental Disabilities
www.cdc.gov/ncbddd/dd/ddmr.htm
This Web section dedicated to Mental Retardation include answers to common questions, resources and links for learning more about the topics of developmental disabilities and mental retardation.

University of Anchorage-Alaska Center for Human Development
www.alaskachd.org/about.html
The Center for Human Development (CHD) is one of 61 University Centers located in every state and territory, which attempts to bring together the resources of the university and the community in support of individuals with developmental disabilities.

 


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