STEP Center

Fragile X Syndrome This topic has information for the parent on the topic of Fragile X Syndrome. Clicking on these links will take you away from the Anchorage School District's Web site. Each link will open in a new window.

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Publications

Fragile X
www.autism.org/fragilex.html
This article from the Center for the Study of Autism provides a general overview of the syndrome.

Summary of Fragile X Syndrome
www.fragilex.org/html/summary.htm
This summary provides information on the prevalence of the syndrome as well as its causes, physical and intellectual characteristics and treatment options.

What is Fragile X?
www.fraxa.org
This FAQ formatted document addresses many frequently asked questions about Fragile X.

Web sites for more information

FRAXA Research Foundation Web site
www.fraxa.org
FRAXA was founded in 1994 by three parents of children with Fragile X syndrome, Katie Clapp, Michael Tranfaglia, MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome.

National Institute of Child Health and Human Development
www.nichd.nih.gov/health/topics/fragile_x_syndrome.cfm
This Web section from the National Institute of Child Health and Human Development includes some general information about Fragile X syndrome, its causes, its features, and its treatments. This publication also describes some of the research directions currently underway to learn more about Fragile X.

The National Fragile X Foundation
www.fragilex.org/html/home.shtml
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.