Joubert Syndrome Foundation
www.joubertsyndrome.org
The Joubert Syndrome Foundation & Related Cerebellar Disorders plays an important role in educating physicians and their support teams as well as increasing public awareness. The Joubert Syndrome Foundation & Related Cerebellar Disorders is a nonprofit organization.
National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov/disorders/joubert/joubert.htm
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for 50 years.
The Genetics of Joubert Syndrome & Related Disorders
www.ccm.ucsd.edu/jsrd.htm
This Web site is maintained by the University of California, San Diego. It has useful information for patients, family, physicians, researchers and service providers.
