Rare disorders

These websites would be good places to search for topics or items that are not listed elsewhere on the STEP Center site.

 


Family Village

www.familyvillage.wisc.edu

Family Villageis a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

 

 

Genetic and Rare Conditions Site

www.kumc.edu/gec/support/

Lay advocacy and support groups, information on genetic conditions/birth defects for professionals, educators, and individuals, national nd international organizations.

 

 

Genetic and Rare Diseases Information Center

http://rarediseases.info.nih.gov/GARD/

The Genetic and Rare Diseases Information Center is a collaborative effort of two agencies of the National Institutes of Health, The Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI) to help people find useful information about genetic conditions and rare diseases.

 

 

Medline Plus Health Information

www.nlm.nih.gov/medlineplus/

This extensive database is maintained by the National Library of Medicine and the National Institutes of Health.

 

 

Mental Health America

www.nmha.org

MHA is an advocacy organization that addresses the full spectrum of mental and substance use conditions and their effects nationwide. It works to inform, advocate and enable access to quality behavioral health services for all Americans.

 

 

National Early Children Technical Assistance Center, NECTAS

www.nectac.org

NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA).

 

 

National Institute of Mental Health

www.nimh.nih.gov/health/

The mission of NIMH is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure.

 

 

National Institute on Deafness and Other Communication Disorders

www.nidcd.nih.gov

NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language.

 

 

National Organization of Rare Diseases

www.rarediseases.org

The National Organization for Rare Disorders (NORD)is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

 

 

Rare Cancers and Related Disorders

www.cancerindex.org/clinks2d.htm

The site includes information that will be of interest to a spectrum of different users; including patients and their relatives, caregivers, health professionals, basic scientists, and others interested in cancer. 

 

 

Substance Abuse and Mental Health Services Administration

www.samhsa.gov

The Substance Abuse and Mental Health Services Administration's (SAMHSA) mission is to reduce the impact of substance abuse and mental illness on America's communities.

 

 


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