• Rare disorders

    These websites would be good places to search for topics or items that are not listed elsewhere on the STEP Center site.

     

     

    Genetic and Rare Conditions Site

    www.kumc.edu/gec/support/

    Lay advocacy and support groups, information on genetic conditions/birth defects for professionals, educators, and individuals, national nd international organizations.

     

    Genetic and Rare Diseases Information Center

    http://rarediseases.info.nih.gov/GARD/

    The Genetic and Rare Diseases Information Center is a collaborative effort of two agencies of the National Institutes of Health, The Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI) to help people find useful information about genetic conditions and rare diseases.

     

    Medline Plus Health Information

    www.nlm.nih.gov/medlineplus/

    This extensive database is maintained by the National Library of Medicine and the National Institutes of Health.

     

    Mental Health America

    www.nmha.org

    MHA is an advocacy organization that addresses the full spectrum of mental and substance use conditions and their effects nationwide. It works to inform, advocate and enable access to quality behavioral health services for all Americans.

     

    National Early Children Technical Assistance Center, NECTAS

    www.nectac.org

    NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA).

     

    National Institute of Mental Health

    www.nimh.nih.gov/health/

    The mission of NIMH is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure.

     

    National Institute on Deafness and Other Communication Disorders

    www.nidcd.nih.gov

    NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, taste, smell, voice, speech, and language.

     

    National Organization of Rare Diseases

    www.rarediseases.org

    The National Organization for Rare Disorders (NORD)is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

     

    Rare Cancers and Related Disorders

    www.cancerindex.org/clinks2d.htm

    The site includes information that will be of interest to a spectrum of different users; including patients and their relatives, caregivers, health professionals, basic scientists, and others interested in cancer. 

     

    Substance Abuse and Mental Health Services Administration

    www.samhsa.gov

    The Substance Abuse and Mental Health Services Administration's (SAMHSA) mission is to reduce the impact of substance abuse and mental illness on America's communities.